1 INTRODUCTION Family-centred care (FCC) is a partnership approach to care between healthcare providers (HCPs), patients and families which recognizes families as the experts on their child's abilities and needs.1, 2 The core principles of FCC include dignity and respect, complete and unbiased information sharing, and supporting patients and families to participate in decision-making.3 As FCC leads to improved patient and family outcomes, this approach is considered the gold standard in...