IKCC
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The International Kidney Cancer Coalition (IKCC) is an independent international network of patient organizations that focus exclusively, or include a specific focus, on kidney cancer. The organization was born from a very strong desire among national kidney cancer patient groups to network, cooperate and share materials, knowledge, and experiences from around the world. Source
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| Scope | International |
|---|---|
| Language | English |
| Country | Netherlands |
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Recent Articles
Search ArticlesSummary of Kidney Cancer Highlights from ASCO 2026
The American Society of Clinical Oncology (ASCO) Annual Meeting was held from 29 May-2 June 2026 in Chicago, USA. The presentations are available on the ASCO website. IKCC partner organisations attended the meeting to keep up to date with the care and treatment of kidney cancer patients. A brief ‘Take home messages’ section is followed by more in-depth review of selected abstracts.
Kidney Cancer Updates from ASCO GU 2026 – Highlights
The American Society of Clinical Oncology Genitourinary Cancers (ASCO GU) Symposium was held from 26-28 February 2026, in San Francisco, California, USA. The presentations are available on the ASCO website. IKCC partner organisations attended the meeting to keep up to date with the care and treatment of kidney cancer patients. A brief ‘Take home messages’ section is followed by more in-depth review of selected abstracts.
Overview: 2025 Global Patient Survey on Kidney Cancer Posters and Publications
Kidney Cancer Research Symposium Boston, US July 2025 Patient Perceptions of Biomarker Testing in Kidney Cancer (KC) from the International Kidney Cancer Coalition (IKCC) Global Patient Survey (GPS) A poster presentation by Dr Eric Jonasch and a corresponding abstract shared GPS results related to patients’ perceptions of biomarker testing.
Summary of Kidney Cancer Highlights from ESMO 2025
This year’s European Society for Medical Oncology (ESMO) Congress was held from 17-21 October 2025, in Berlin, Germany. The presentations are available to read on the ESMO website. Some affiliates of the International Kidney Cancer Coalition (IKCC) went to the meeting to keep up to date with the care and treatment of patients with kidney cancer. In this report, a brief ‘Take home messages’ section is followed by more in-depth review of selected abstracts.
The COMFORT Project
IKCC is supporting the COMFORT Project – COMputational Models FOR patienT stratification in urologic cancers – Creating robust and trustworthy multimodal AI for health care. COMFORT is a four-year project to enhance cancer care through data-driven decision support systems funded by the European Commission Horizon Europe.
Bart van Goudoever, PhD
Board Member, Secretary/Treasurer Elect, The Netherlands Dr Bart van Goudoever is a motivated and experienced board member committed to transforming organisational goals into practical, results-driven initiatives. With a strategic mindset and a hands-on approach, he enjoys helping organisations align their vision with actionable plans that make a meaningful impact. Born in 1960, Bart earned his PhD in Economic Sciences and has built a distinguished career as a management consultant.
Call for Expressions of Interest to Join IKCC Board of Directors
In keeping with the IKCC Articles of Incorporation, I am pleased to announce that the IKCC Board of Directors is seeking to fill a vacancy created as a result of the appointment of Ms. Claudia Ungarelli to the position of Vice Chair effective from 1 November 2025. This move has created a vacant position in the category of General Director. The IKCC Board is seeking applications from candidates who share our mission and passion to reduce the global burden of kidney cancers.
Summary of Kidney Cancer Highlights from ASCO 2025
This year’s American Society of Clinical Oncology (ASCO) Annual Meeting was held from 30 May to 3 June 2025, in Chicago, USA. The presentations are available to view on the ASCO website. Some affiliates of the International Kidney Cancer Coalition (IKCC) went to the meeting to keep up to date with the care and treatment of patients with kidney cancer. A brief “Take home messages” section is followed by more in-depth review of selected abstracts.
CARE1 Pragmatic Clinical Trial
IKCC is a full member of the of the Management Board of CARE1 Pragmatic Clinical Trial, a European phase III multi-centre study of first-line treatment for metastatic kidney cancer. Coordinated from France and involving eight European countries, the study aims to help oncologists around the world select the best treatment combination for each kidney cancer patient using a biomarker. IKCC has the role of representing the perspectives, insights and experiences of kidney cancer patients.
Research Initiatives
Research InitiativesKarin Kastrati It is through research that the understanding of kidney cancer is improved, leading to more effective treatments, improved care and better health policies. IKCC believes the best research happens when patients’ perspectives are included and is committed to bringing patients’ experiences and values to research initiatives. IKCC Research Initiatives: The DISCERN Project CARE1 Pragmatic Clinical Trial