Journal of Participatory Medicine
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Journal
The Journal of Participatory Medicine is the official journal of the Society for Participatory Medicine. The journal's mission is to transform the culture of medicine by providing an evidence base for participatory health and medicine. It aims to advance both science and practice across a variety of participatory medicine areas of focus, including: patient and caregiver empowerment; patient-clinician partnership; use of technology to improve patients’ health and health care; participatory design and citizen science. Papers are published in six areas: research articles, editorials, narratives, case reports, reviews, and updates on related research in other media. It will explore how participation affects outcomes, resources, and relationships in healthcare; which interventions increase participation; and the types of evidence that provide the most reliable answers. Source
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| Scope | National, Trade/B2B |
|---|---|
| Language | English |
| Country | Canada |
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| Accepts contributed content | Yes |
Recent Articles
Search ArticlesUsing Partner-Driven Maximum Variance Sampling to Form a Lived Experience Panel: Step-by-Step Tutorial
Table 1. Function of each project team role and rationale for inclusion.
Participatory Digital Twins for Chronic Care: From Predictive Models to Shared Sensemaking
Core Data and Modeling Layer Interaction and Translation Layer: The Role of GenAI Governance and Social Layer Locating Participation Across Layers Figure 1.
Enhancing Patient Participation in Co-Productive Decision-Making With Personal Value Sets: Clinical Trial Prototype
The Clinical Potential of a New Approach EQ-5D-5L OPUF Step 1. Weigh the Health State Levels Step 2. Rank the Dimensions Step 3. “Swing Weight” the Dimensions Step 4. Evaluate the State “Being Dead” Step 5. Derive the Dimension-Level Coefficients “On average, it took participants about 9 minutes to complete the survey. The median was eight; the shortest duration was three; and the longest was 32 minutes [].” “We found that health state preferences systematically differed between groups...
Mapping Peer Support in Antidepressant Discussions on Reddit: Pilot Network Analysis
Background Social Support Behavior Code Epistemic Network Analysis To identify common antidepressant side effects, withdrawal experiences, and types of support expressed in online discussions of antidepressant use To visualize the relationships among common themes by constructing a network model To expand the conceptualization of edges within the ENA framework to capture the complexity of online discourse on antidepressant medications, reported side effects, withdrawal experiences, and...
Evaluation of a Digital Intervention to Improve the Health Outcomes of Older Adults: Secondary Data Analysis
Ethical Considerations Recruitment Intervention Outcome Measures Overview Table 1. Schedule of measures. Outcome measure Study stage Baseline Week 8 Week 12 ONS-4 ✓ ✓ ✓ FCQ ✓ ✓ Health survey ✓ ✓ ✓ Retrospective questions ✓ ✓ ✓ aONS-4: Office of National Statistics personal well-being questions. bFCQ: Food Choice Questionnaire.
Real-World Data Needs Real-World Doctors: When Automation Advances Faster Than Clinical Workflow
Figure 1. the When detection outpaces care: the patient's voice. Table 1. Mapping the paradox of progress in clinical artificial intelligence (AI). The promise The reality gap The participatory solution Earlier detection Alerts outpace workforce capacity. Detection happens in minutes; clinical response can take weeks. Workflow co-design: involving patients and clinicians in prioritizing alerts and defining response expectations for high-quality health care.
Experiences and Perceptions Within a Co-Created Drone Transport Initiative With Rural First Nation and Non–First Nation Communities: Semistructured Interview Study
Project Team Structure Description of Host Communities Sampling and Data Collection Figure 1. Timeline of key events and activities in Phase I of the Drone Transport Initiative. Data Analysis Ethical Considerations Overview Textbox 1. Themes derived from the thematic analysis.
Peer-Led Emotional CPR Program in Black, Indigenous, and People of Color Communities: Convergent Mixed Methods Study
Study Design Description of Emotional CPR Training Training Facilitators Ethical Considerations Participants and Recruitment Quantitative Data Collection Validated Psychological Measures Herth Hope Scale Empowerment Scale Flourishing Scale Mindful Attention Awareness Scale Active-Empathic Listening Scale Social Connectedness Scale-Revised Positive and Negative Affect Schedule UCLA 3-Item Loneliness Scale Emotional CPR Scale Reliability Analysis of Measures Table 1.
Developing a Culturally Tailored Narrative Video for Skin Cancer Prevention Among Spanish-Speaking Hispanic Outdoor Workers: Co-Design Study
Ethical Considerations Theoretical Frameworks Formative Focus Group Data to Inform the Video Script Methods to Develop and Obtain Feedback on Video Script Table 1. Member characteristics.
Investigation of the Content Validity, Feasibility, Internal Consistency, and Construct Validity of 5 Patient-Reported Outcome Questions on Patient Involvement in Care Among Adolescents With Type 1 Diabetes: Multimethods Study
Design Ethical Considerations Study Participants PRO Questions for Patient Involvement and Clinical PRO-Context Textbox 1. Indicator measurement regarding patients' experience of involvement (PRO: patient-reported outcome). The healthcare staff inquired about my own experiences with my illness/condition.