Charlotte Raven reflects on how her life has changed since being diagnosed with HD, and where she's going next. I have Huntington’s disease, a degenerative neurological illness that typically manifests in mid life. I’m 48. I’ve been symptomatic for the past eight years, deteriorating slowly, with less and less to do. My friends are all busy juggling jobs and young families. Their lives look enviable from where I’m sitting. My life is becoming ever more constrained.