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Most cost-effectiveness analyses in epilepsy attempt to base quality of life (QOL) on seizure frequency. However, QOL in epilepsy is multi-factorial, including psychosocial factors that are best captured in a disease-specific patient reported outcome (PRO). This study uses QOL surveys from patients with epilepsy to derive utility weights from a validation study on the QOLIE-31 (Quality Of Life In Epilepsy), a commonly-used disease-specific PRO.
Interstitial Cystitis (IC) is a debilitating condition that affects up to five percent of the United States (US) population (Clemens, 2015). The condition is characterized by bladder pain, urinary urgency and frequency, and in some patients, bladder lesions called Hunner’s Lesions (HL). Patients with HL experience a clinical course distinct from patients without HL. Prior research describing the burden of IC is outdated and lacks HL-level detail.
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