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Articles by Maddie Hunter
Multiple Myeloma in Older Adults
Maddie Hunter: Hi. I'm Maddie Hunter and I'm your host today for this installment of Answers Now. And I am a long-term myeloma patient. I've been living with myeloma for 20 years and I lead a support group for myeloma patients in Philadelphia. I'm going to be joined today by Dr. Kira Grant. She is Assistant Professor and Geriatric-Hematologist at the University of North Carolina in Chapel Hill. Dr. Grant, would you like to introduce yourself? Dr. Grant: Sure.
Our Multiple Myeloma: The Art of Medicine
Published on October 28, 2021 Multiple Myeloma Specialist Explains the Art of Medicine Maddie Hunter knew she had chosen the right multiple myeloma specialist when Dr. Jagannath spent three hours with her at her first appointment, drawing diagrams of what was happening inside her body.
Finding the Right Multiple Myeloma Specialist
Published on October 27, 2021 What Should a Multiple Myeloma Patient Look for in a Specialist? Maddie Hunter never imagined she would be spending 20 years with Dr. Sundar Jagannath when they first met just months after her diagnosis of multiple myeloma. But two decades later, Maddie and her care partner, Ames Nelson, are here to tell us how they found the right myeloma specialist for her needs through research, time, and dedication. Support for this series has been provided by Janssen Oncology.
Mindset Matters in Multiple Myeloma Care
Published on October 27, 2021 How Is Mindset Linked to Quality of Life? The mindset of the doctor and the patient are much more connected than one might suspect. In this segment, Sundar Jagannath, MD, illuminates how mindset is linked to quality of life in myeloma patients, and Maddie Hunter tells us how her perspective on her multiple myeloma diagnosis has shifted over the years. She and her care partner, Ames Nelson, also discuss how support groups are a valuable resource in the cancer journey.
Treating Myeloma in Patients with Renal Insufficiency
View next Published on June 16, 2020 For myeloma patients whose kidneys are impaired, what treatment options are available to them? Renal impairment often excludes patients from clinical trials, so learning has to come in other ways, like observational studies. In this segment from our recent Answers Now program, patient advocate Maddie Hunter shares results from three kidney related abstracts from the 2020 American Society of Clinical Oncology (ASCO) meeting.
New Treatment Options Give Hope to Myeloma Patients
View next Published on June 16, 2020 With new treatment options emerging, should multiple myeloma patients feel hopeful about the future? In this final segment from our recent Answers Now program, patient advocates Jim Omel, Cindy Chmielewski and Maddie Hunter, led by Jack Aiello, share why they are more hopeful than ever for their fellow myeloma patients.
CAR T-Cell Clinical Trial Updates for Myeloma Patients
View next Published on June 15, 2020 What do myeloma patients need to know about CAR T-cell clinical trials? In this segment from our recent Answers Now program, host and patient advocate Jack Aiello explains the latest information on CAR-T cells and shares results from three related trials named KarMMa, EVOLVE and CARTITUDE. This data was recently presented at the 2020 American Society of Clinical Oncology (ASCO) annual meeting.
What Does the StaMINA Trial Mean for Myeloma Patients?
View next Published on June 15, 2020 What is the StaMINA trial, and what does it mean for multiple myeloma patients? In this segment from our recent Answers Now program, patient advocate Cindy Chimielewski explains what the StaMINA trial is and shares the latest results from this six-year study. This trial was recently presented at the 2020 American Society of Clinical Oncology (ASCO) annual meeting.
What Does the ENDURANCE Trial Mean for Myeloma Patients?
View next Published on June 12, 2020 In this segment from our recent Answers Now Program, patient advocate Jim Omel explains what the ENDURANCE trial is and shares the latest results. He and host Jack Aiello discuss side effects, pros and cons, and what it all means for their fellow myeloma patients. This trial was recently presented at the 2020 American Society of Clinical Oncology (ASCO) annual meeting. Watch now to learn more. This is the first part of a five-part series.
Letter to the Editor By MADDIE HUNTER
Editor, Yonkers Tribune Our national unemployment rates are higher than those experienced during the Great Depression, yet our healthcare insurance industry is boasting about the possibility for expanded profits! Insurers who left the Obamacare marketplace when the individual mandate to hold insurance was lifted are now reentering numerous state’s offerings. How can this be?
Creating Your Myeloma Treatment Path and Factors to Consider
View next Published on May 8, 2020 With so many available treatment options for multiple myeloma, how can you and your doctor determine which path is best for you? In this segment from our recent virtual town meeting, our panel of myeloma experts explain the factors they consider when creating a patient treatment plan and what therapies are currently available.
Multiple Myeloma Patients Discuss Support and Survivorship
View next Published on May 7, 2020 In this segment from our recent virtual myeloma town meeting, 18-year myeloma survivor Maddie Hunter discusses support and survivorship with 10-year survivor Lynn Worthen, his care partner Mary and 12-year survivor Cindy Chmielewski. Watch as Lynn shares his story of being diagnosed, receiving treatment at the University of Arkansas for Medical Sciences (UAMS) Myeloma Center and what life is like now being in remission.
Multiple Myeloma Support Resources
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The Value and Phases of Multiple Myeloma Clinical Trials
View next Published on May 4, 2020 What are the phases of a clinical trial? When should you consider participating in one? What else do you need to know and where can you find that information? We asked these questions and more to a panel of leading multiple myeloma experts during our recent virtual town hall meeting.
Myeloma Experts Discuss Coronavirus and Impact on Patient Care
View next Published on April 28, 2020 Does your myeloma treatment plan need to change in light of the coronavirus? If so, how? And what does immunocompromised mean? We asked these questions and more to a panel of leading myeloma experts during our recent virtual town hall meeting. Watch as they explain why myeloma patients are at increased risk for infection and what healthcare providers are doing to protect their patients right now, including the use of telemedicine.
Social Workers Connect Myeloma Patients With Resources
View next Published on April 24, 2020 “Social workers are the human side of medicine,” says Harold Dean, social work program manager at the University of Arkansas for Medical Sciences Myeloma Center. In this segment from our recent virtual myeloma town hall meeting, he explains to host and patient advocate Maddie Hunter how social workers can provide practical help depending on a patient’s unique situation.
Coronavirus: Being Physically Distant But Staying Socially Connected
Published on April 9, 2020 How are myeloma patients feeling about the coronavirus? What are support groups talking about during this time? During this People Are Talking program, support groups leaders Maddie Hunter, Gail McCray and Jack Aiello join Cindy Chmielewski to share how they are coping, shifts in their support group logistics and topics they are covering. Watch for tips on how to stay socially connected during this physically distant time.
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