COLLEAGUES USED TO describe me as organised. Finding myself in labour eight weeks before my first baby was due, with a month still left at work, and without even a Babygro bought, was not like me. I had completed just one antenatal class. Its focus on baby equipment, specifically buggies, left me feeling entirely unprepared to give birth. I wasn’t prepared for the subsequent 18 years either. Louis was diagnosed with Prader-Willi syndrome in 2004, a month after he was born.
