Professor of Bioethics at the University of Leuven in Belgium.
Member of WADA Independent Ethics Board
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Articles by Pascal Borry
Managing concussions in football: a review of football associations' return-to-play guidance
Across the 73 protocols including an RTP protocol, a broadly coherent six-stage model was observed including: (1) initial period of rest or relative rest; (2) progression to light aerobic exercise; (3) sport-specific activities (e.g., ball work, running, and direction changes); (4) non-contact training drills; (5) full-contact practice; and (6) RTP. Despite the overall consistency in structure, a number of key variations were observed. Fig.
Ethical and Practical Considerations in Implementing Population-Based Reproductive Genetic Carrier Screening
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Dealing with ambivalence in the practice of advanced genetic healthcare: towards an ethical choreography - European Journal of Human Genetics
Abstract The implementation of next-generation sequencing (NGS) in diagnostic practice has stimulated ongoing debates on how to construct and perform “good” genomic care. Our multi-sited qualitative fieldwork at two large European centres for human genetics (CHGs) revealed tangible ambivalence in beliefs, norms, and actions in the enactment of NGS practices across sites stemming from differing expectations, interests, demands, and tensions.
Reconciling the biomedical data commons and the GDPR: three lessons from the EUCAN ELSI collaboratory - European Journal of Human Genetics
Abstract The coming-into-force of the EU General Data Protection Regulation (GDPR) is a watershed moment in the legal recognition of enforceable rights to informational self-determination. The rapid evolution of legal requirements applicable to data use, however, has the potential to outstrip the capabilities of networks of biomedical data users to respond to the shifting norms.
Sport-related concussion research agenda beyond medical science: culture, ethics, science, policy
Introduction In 2017, the Berlin Concussion in Sport Group Consensus Statement (CiSG CS) was published alongside the Concussion Assessment Tool 5, the SCAT5 and Child SCAT5, ‘with the objective of offering a simple, clear message with tools that equip the practitioner to diagnose and manage concussion in various different sports’.1 Despite the plethora of professional and scientific guides, consensuses and reviews of concussion and other head injuries in sport, it is undoubtedly the leading...
Frontiers | A Gap or Lacuna in the World Anti-Doping Code? Remarks on the CAS Interpretation in IOC, WADA, and ISU v. RUSADA, Kamila Valieva and Russian Olympic Committee (CAS OG 22-08, CAS OG 22-09, and CAS OG 22-10)
Introduction On 14 February 2022, the Court of Arbitration for Sport (CAS) rendered an award in the mediatized case of the new Russian figure skating prodigy, Kamila Valieva, who is 15 years old and therefore considered a protected person under the World Anti-Doping Code (WADC). In its award, the CAS decided to reject the appeal against the decision of the Russian Anti-Doping Agency (RUSADA) Disciplinary Committee lifting the Athlete's suspension following a positive doping test.
Factors that influence data sharing through data sharing platforms: A qualitative study on the views and experiences of cohort holders and platform developers
Loading metrics Open Access Peer-reviewed Research Article Thijs Devriendt , Pascal Borry, Mahsa Shabani Thijs Devriendt, Pascal Borry, Mahsa Shabani Published: July 2, 2021 https://doi.org/10.1371/journal.pone.0254202 Figures Abstract Background Infrastructures are being developed to enhance and facilitate the sharing of cohort data internationally. However, empirical studies show that many barriers impede sharing data broadly.
‘It’s much more grey than black and white’: clinical geneticists’ views on the oversight of consumer genomics in Europe
Metrics Downloaded 0 times History Received 26 May 2019 Accepted 10 January 2020 Published online 10 March 2020 Information © 2020 Future Medicine Ltd KeywordsAcknowledgments We would like to thank all the clinical geneticists who participated in this study and shared their invaluable experiences with us. We would also like to thank M Shabani, D Vears and D Chokoshvili for assisting in the provisional validation of codes.
Newspaper coverage of biobanks
Ubaka Ogbogu,1,2 Maeghan Toews,2 Adam Ollenberger,2 Pascal Borry,3 Helene Nobile,3,4 Manuela Bergmann,4 and Timothy Caulfield2,5 Ubaka Ogbogu 1Faculties of Law and Pharmacy & Pharmaceutical Sciences, University of Alberta, Edmonton, Alberta, Canada 2Health Law Institute, Faculty of Law, University of Alberta, Edmonton, Alberta, Canada Maeghan Toews 2Health Law Institute, Faculty of Law, University of Alberta, Edmonton, Alberta, Canada Adam Ollenberger 2Health Law Institute, Faculty of Law,...
Genetic health professionals' experiences returning results from diagnostic genomic sequencing to patients
ORIGINAL ARTICLE Danya F. Vears Corresponding Author E-mail address: dvears@unimelb.edu.au Melbourne Law School, University of Melbourne, Carlton, Australia Murdoch Children's Research Institute, The Royal Children's Hospital, Parkville, Vic., Australia Department of Public Health and Primary Care, Center for Biomedical Ethics and Law, KU Leuven, Belgium Leuven Institute for Human Genetics and Society, Leuven, Belgium Correspondence Danya F.
Consent insufficient for data release
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The author who wasn’t there? Fairness and attribution in publications following access to population biobanks
We conducted a document analysis that explored publication ethics and authorship in the context of population biobanks from both a theoretical (e.g. normative documents) and practical (e.g. biobank-specific documentation) perspective. The aim was to provide an overview of the state of authorship attribution in population biobanks and attempt to fill the gap in discussions around the issue.
Geolocalisation of athletes for out-of-competition drug testing: ethical considerations. Position statement by the WADA Ethics Panel
Some prohibited substances are detectable only for a limited period of time in an athlete’s body while still maintaining a performance-enhancing effect. Designed to protect the integrity of sport, out-of-competition doping controls increase the efficiency of the antidoping programmes. One approach, the ‘whereabouts system,’ was introduced as a mechanism to enable out-of-competition testing. Indeed, the only way to perform such testing is by knowing where athletes are at a particular time.
Geolocalisation of athletes for out-of-competition drug testing: ethical considerations. Position statement by the WADA Ethics Panel
Some prohibited substances are detectable only for a limited period of time in an athlete’s body while still maintaining a performance-enhancing effect. Designed to protect the integrity of sport, out-of-competition doping controls increase the efficiency of the antidoping programmes. One approach, the ‘whereabouts system,’ was introduced as a mechanism to enable out-of-competition testing. Indeed, the only way to perform such testing is by knowing where athletes are at a particular time.
Leuven University Press
A smart and witty guide to all you want to know about human genetics Human genetics is not the playground of science alone. Genetics concerns all of us, for we all have DNA, genes, genomes, and chromosomes. Our genes determine partly our appearance and our behaviour, our talents and our health risks. The authors of The Human Recipe use humour to explain what we understand about human genetics. With anecdotes and topical examples, they demonstrate how genetics affects our everyday lives.
Designing expanded carrier screening panels: results of a qualitative study with European geneticists
Aim: To explore the views of clinical and molecular geneticists on the inclusion of disorders and specific pathogenic mutations into expanded carrier screening (ECS) tests for reproductive purposes. Materials & methods: In-depth semistructured interviews were conducted with 16 European geneticists between April and September 2014. Results: All participants supported carrier screening for severe, childhood-onset autosomal recessive disorders with known natural history.
Do It Yourself Newborn Screening
The American Medical Association is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians. The AMA designates this journal-based CME activity for a maximum of 1 AMA PRA Category 1 CreditTM per course. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
Marginally scientific? Genetic testing of children and adolescents for lifestyle and health promotion
‘Genetic testing can reveal crucial information to guide your training and nutrition strategies based on predispositions built into your DNA. Genetic testing identifies the ideal nutrition, training and recovery strategies for you and helps explain why athletes given the same training and nutrition plans respond differently.
Marginally scientific? Genetic testing of children and adolescents for lifestyle and health promotion
‘Genetic testing can reveal crucial information to guide your training and nutrition strategies based on predispositions built into your DNA. Genetic testing identifies the ideal nutrition, training and recovery strategies for you and helps explain why athletes given the same training and nutrition plans respond differently.
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