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Articles by TB Proof
“As a patient I do not belong to the clinic, I belong to the community”: co-developing multi-level, person-centred tuberculosis stigma interventions in Cape Town, South Africa | BMC Global and Public Health | Full Text
We conducted a qualitative study using a series of group discussions to co-develop a counselling-based TB stigma intervention, as part of a community-engaged research study: Use My Voice to EndTB [29]. The entire study — including the qualitative work — was co-led by a collaborative team of researchers, including TB survivors from TB Proof, a TB advocacy non-governmental organisation based in South Africa, and the Desmond Tutu TB Centre, Stellenbosch University.
“As a patient I do not belong to the clinic, I belong to the community”: co-developing multi-level, person-centred tuberculosis stigma interventions in Cape Town, South Africa | BMC Global and Public Health
Abstract Anticipated, internal, and enacted stigma are major barriers to tuberculosis (TB) care engagement and directly impact patient well-being. Unfortunately, targeted stigma interventions are lacking. We aimed to co-develop a person-centred stigma intervention with TB-affected community members and health workers in South Africa.
Strengthening accountability for tuberculosis policy implementation in South Africa: perspectives from policymakers, civil society, and communities - BMC Global and Public Health
Abstract Translating health policy into effective implementation is a core priority for responding effectively to the tuberculosis (TB) crisis. The national TB Recovery Plan was developed in response to the negative impact that the COVID-19 pandemic had on TB care in South Africa. We aimed to explore the implementation of the TB Recovery Plan and develop recommendations for strengthening accountability for policy implementation for this and future TB policies.
“This is an illness. No one is supposed to be treated badly”: community-based stigma assessments in South Africa to inform tuberculosis stigma intervention design | BMC Global and Public Health | Full Text
We conducted a mixed methods study with a convergent design, meaning that quantitative and qualitative data were collected and analyzed in a similar timeframe [28]. From January 2021 to March 2022, we undertook community-based stigma surveys and in-depth interviews with people affected by TB.
Tuberculosis care does not end at treatment completion- a perspective from tuberculosis survivors
A systematic review and meta-analysis by Kamila Romanowski and colleagues found the force of mortality for tuberculosis survivors to be 2·91 (95% CI 2·21–3·84) times higher than in those who had never had tuberculosis. Post-tuberculosis lung damage negatively impacts many tuberculosis survivors' quality of life. 3 Meghji J Lesosky M Joekes E et al. Patient outcomes associated with post-tuberculosis lung damage in Malawi: a prospective cohort study. Thorax.
End stigmatizing language in tuberculosis research and practice
News & Views End stigmatizing...
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