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Ariel Henley on Muck Rack

Ariel Henley

As seen in: CNN, The New York Times, HuffPost, The Washington Post, The Atlantic, WIRED Magazine, Slate, Sydney Morning Herald, Vox, Bustle and
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Articles

Books in Brief: A Face for Picasso, Walrus Song, Cat Kid Comic Club Perspectives

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By Ariel Henley, Farrar Straus Giroux, Timothy Basil Ering
| Buffalo News Verified
Books in Brief: A Face for Picasso, Walrus Song, Cat Kid Comic Club Perspectives 1 of 3 MEMOIR A Face for Picasso: Coming of Age With Crouzon Syndrome by Ariel Henley; Farrar Straus Giroux, 320 pages ($18.99) Ages 12 to 18. ... Ariel Henley has written a stunning, poignant memoir of growing up with Crouzon Syndrome, a rare disorder where the bones in the skull don't grow. Hers is a gripping coming-of-age tale of excruciating physical and emotional pain, of sisterhood, of survival and healing.
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Who Are We If Not Our Faces?

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By Ariel Henley
| toptechnicalsolutions.com
Undergoing dozens of operations to treat Crouzon syndrome made me look more “normal.” It also made me question my identity. Source link
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Who Are We If Not Our Faces?

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By Ariel Henley
| WIRED Magazine Verified
There'd been a time when Zan and I were so identical, I could hardly tell where I ended and she began. In photos from childhood, I cannot tell you who is who. After our diagnosis, my parents had a portrait taken of Zan and me. For years afterward, it hung in the hallway of the craniofacial unit at the Children's Hospital in Oakland. It was part of the hospital's campaign celebrating patients' unique, diverse faces.
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