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Parental perspectives on pain detection, assessment, and management in their highly dependent children with cerebral palsy: A cross-sectional study
Keywords Children adolescents and young adults Parents Cerebral palsy Pain management Home Introduction Pain is traditionally categorized according to duration, as acute, short-lived, and chronic, ongoing. In certain conditions, such as cerebral palsy (CP), children and young adults may encounter both “typical” pediatric acute pain-inducing events, as well as, CP-related ongoing pain (Eriksson et al., 2020). Pain has positive and negative aspects.
Infant’s difficult temperament characteristics predict poor quality of life in parents of infants with complex CHDs post-cardiac surgery
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Early growth trajectory is associated with psychological stress in parents of infants with congenital heart disease, but moderated by quality of partner relationship
All but one parent ( n = 135) reported being a mother, with more than two-thirds (68%) completing a college education and almost three-quarters (74%) having private insurance ( Table 1 ). Mothers' infants were mostly White (82%), non-Hispanic (93%), and prenatally diagnosed with the CHD (81%). Approximately half (54%) were diagnosed with single ventricle physiology.
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