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As a journalist, you can create a free Muck Rack account to customize your profile, list your contact preferences, and upload a portfolio of your best work.Articles
Different operationalizations of the capability approach in evaluating rehabilitation for persons with neuromuscular diseases: a mixed-methods study
Abstract Purpose The capability approach (CA) is increasingly used in healthcare, but its use in evaluating interventions remains challenging. Therefore, in the Rehabilitation and Capability care for patients with Neuromuscular diseases (ReCap-NMD) study, we conducted a mixed-methods analysis to evaluate how rehabilitation affects capabilities of persons with facioscapulohumeral muscular dystrophy or myotonic dystrophy type 1.
Experiences of living with GSD5 (McArdle) disease: challenges and strategies. A qualitative study in the Netherlands
Abstract Purpose Glycogen Storage Disease type 5 (GSD5 or McArdle disease) is caused by deficient glycogen phosphorylase enzyme activity in skeletal muscles. Individuals with GSD5 experience symptoms like muscle pain, fatigue, and tachycardia during exertion. Our study aimed to explore the lived experiences of individuals with GSD5, focusing on their daily challenges, the process of being diagnosed, and management strategies.
Care for capabilities: Implementing the capability approach in rehabilitation of patients with neuromuscular diseases. Study protocol of the controlled before-after ReCap-NMD study
Loading metrics Open Access Study Protocol Bart Bloemen , Eirlys Pijpers , Edith Cup, Jan Groothuis, Baziel van Engelen, Gert Jan van der Wilt Bart Bloemen, Eirlys Pijpers, Edith Cup, Jan Groothuis, Baziel van Engelen, Gert Jan van der Wilt Published: December 21, 2021 https://doi.org/10.1371/journal.pone.0261475 Figures Abstract Background High quality care of patients with neuromuscular diseases requires a personalised approach that focuses on achieving and maintaining a level of...
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