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Bowmoor House

As seen in: Wiley Online Library
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Articles

Can the Development of Orphan Drugs Include Wider Patient Engagement? A Citizens' Jury to Explore a Promissory Notion

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By Julia Frost, South Cloisters, Jessica Mandizha, Bowmoor House
| Wiley Online Library
1 Introduction Orphan drugs are medicinal products for the diagnosis, prevention or treatment of life-limiting but relatively ‘rare’ or orphan diseases. It is claimed that orphan drugs are not developed by the pharmaceutical industry for economic reasons but in response to unmet needs [1].
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