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Hereditary angioedema in Spain: medical care and patient journey - Orphanet Journal of Rare Diseases
The expert surveys showed a high variability in the HAE-C1INH patient journey. Several teleconferences were held to discuss the results of the surveys and the literature review and build the HAE-C1INH patient journey. In those cases where there was a high variability or there were no published data, the experts were specifically asked to reach a consensus.
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