Julia Olff

View next Published on June 1, 2020 Key Takeaways With an MPN diagnosis, it’s important to develop a long-term relationship with a medical team you trust. The COVID era has ushered in many treatment advances, some of which may become permanent, benefiting MPN patients. A care partner can often be a great advocate for seeking out additional expert advice if the patient is uncomfortable taking that role.

View next Published on May 4, 2020 How are people who are living with myeloproliferative neoplasms (MPNs) dealing with the coronavirus pandemic? In this episode of People Are Talking, four MPN patients from around the United States share their coping strategies and offer advice for staying socially connected while physically distant. Julia Olff is embracing fresh perspectives, nature walks and new technology.

Published on February 10, 2020 Key Takeaways After living with MPNs since her 20s, Samantha underwent a stem cell transplant. Samantha read a lot of booklets from medical institutions and journal articles with technical details but saw there was a lack of written information from patients themselves. That's what inspired her to write her blog series. You can read Samantha’s three-part blog series on Patient Power, which will be coming soon.