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Articles by Mandy Ryan
Belfast researchers explore inequalities facing people in NI with incurable metastatic breast cancer
The charity has awarded £383,600 to researchers at Queen’s University Belfast to deepen the understanding of inequalities people living with the incurable disease in Northern Ireland experience at different stages - from diagnosis through to treatment, care, and accessing support services. Metastatic breast cancer, also known as secondary or stage 4 breast cancer, happens when breast cancer spreads to another part of the body. While it’s treatable, it can’t currently be cured.
New study uncovers potential way to prevent breast cancer in pre-menopausal women
Researchers at the Manchester Breast Centre, based at The University of Manchester, found that blocking the effects of the hormone progesterone, using ulipristal acetate, a drug already used on the NHS, may reduce the risk of breast cancer developing in women before the menopause, with a strong family history of the disease. Progesterone is a hormone that can drive breast cancer development. It promotes the growth of a type of breast cell, that has the potential to turn into breast cancer.
Seven charities unite to explore new frontier in preventing cancer
6 min read We're one of seven cancer charities who have joined forces to call for exploration into whether a cancer drug called a PARP inhibitor – already used to treat cancer - could one day be used to prevent cancer in people at high genetic risk.
Glasgow scientists receive funding to pave way to stopping aggressive breast cancer spreading
5 min read Researchers are hoping to develop a more targeted treatment for people with triple negative breast cancer, thanks to new funding from Breast Cancer Now and Secondary1st. Professor Seth Coffelt at the University of Glasgow has been awarded £399,670 to fund research that will help further understanding of a type of immune cell that can kill triple negative breast cancer cells and stop them spreading.
Stakeholder prioritization preferences for individuals awaiting hip and knee arthroplasty: the PrioritizAtion of THose aWaiting hip and knee ArthroplastY (PATHWAY) study
This study provides an innovative stakeholder-led method for determining comparative priority for those awaiting primary elective hip and knee arthroplasty.
New packaging for Buccolam (midazolam) oromucosal solution
Mandy Ryan 9 July 2024 New packaging for Buccolam (midazolam) oromucosal solution Neuraxpharm UK has informed us of a change to the packaging for all strengths of its oral syringes containing Buccolam (midazolam) oromucosal solution. The self-adhesive strap that used to act as a seal for the tubes containing the syringes has now been removed. Tubes are now fitted with a new, ridged cap that fits better and stays in place without the need for a seal.
Epilepsy won't stop Ryan achieving his personal bests
If anyone asks Ryan Tindall why he is constantly striving to run further and raise even more money for epilepsy charities, he’ll answer “Why not?”. And it’s this can-do attitude that helped Ryan to take on his biggest challenge yet. In April, he planned an Ultra Duathlon, which would see him cycling from his home in Liss, Hampshire up to Manchester over a 48-hour period, then don his running shoes for the Manchester Marathon on the third day.
O2 removes advert with strobe lighting after people with photosensitive epilepsy raise concerns
Mandy Ryan 9 May 2024
“Game-changing” new laser beam therapy will help to reduce seizures in some patients with epilepsy
Mandy Ryan 8 May 2024 “Game-changing” new laser beam therapy will help to reduce seizures in some patients with epilepsy The NHS will roll out world-leading laser beam therapy to help reduce seizures in a small number of people with drug-resistant epilepsy from next month. Laser Interstitial Thermal Therapy (LITT) targets the part of the brain causing seizures without the need for invasive surgery.
New research finds half of people living with Dravet Syndrome experience feeding problems
A study that was jointly funded by the Epilepsy Society has found that over half (52 per cent) of children and adults with Dravet Syndrome have experienced some form of feeding problem, with some reporting multiple issues. Around one in five (17 per cent) of the people with Dravet Syndrome involved with the study had a feeding tube, known as a gastrostomy, and this course of action was being considered for a further five per cent.
Trade-offs between overall survival and side effects in the treatment of metastatic breast cancer: eliciting preferences of patients with primary and metastatic breast cancer using a discrete choice experiment
Trade-offs between overall survival and side effects in the treatment of metastatic breast cancer: eliciting preferences of patients with primary and metastatic breast cancer using a discrete choice experiment Statistics from Altmetric.com Request Permissions If you wish to reuse any or all of this article please use the link below which will take you to the Copyright Clearance Center’s RightsLink service.
O2 confirms its advert has passed photosensitive epilepsy safety tests
We reached out to mobile network O2 this week after a number of people with epilepsy contacted us with concerns about strobe lighting in its recent advert. The ‘Only on priority’ advert, which has been aired widely over the last two weeks, has scenes of people dancing at a concert, and features flashing lights from a few seconds in.
Report exploring the impacts of some anti-seizure medicines in pregnancy attracts strong support at parliamentary launch
Mandy Ryan 25 January 2024 Report exploring the impacts of some anti-seizure medicines in pregnancy attracts strong support at parliamentary launch Earlier this week we held a formal launch event in Westminster for our report exploring the lifetime costs of disabilities caused by exposure to epilepsy medications during pregnancy.
MHRA resources give guidance around new restrictions on valproate prescribing
Mandy Ryan 25 January 2024 MHRA resources give guidance around new restrictions on valproate prescribing The Medicines and Healthcare Regulatory Agency (MHRA) has published new materials for patients and healthcare professionals to help them to understand and implement the restrictions on valproate prescribing that come in from next week.
Different versions of levetiracetam granules now available
Mandy Ryan 21 December 2023 Different versions of levetiracetam granules now available Up until recently, there was only one version of levetiracetam granules available on prescription in the UK. Patients being prescribed levetiracetam granules would always receive Desitrend coated granules, which can be swallowed with liquid or food and are licensed to be administered in a feeding tube with 10ml of water.
DVLA contact centre opening times over Christmas period
Mandy Ryan 14 December 2023 DVLA contact centre opening times over Christmas period The Driver and Vehicle Licensing Agency (DVLA) has published its contact centre’s opening hours over Christmas and the New Year. The contact centre will be closed on Christmas Eve and Bank Holidays during this time, and will have slightly reduced opening hours on 22 December and 27-29 December. Full details on opening times are available on the DVLA website.
‘Slow’ brain waves could guard against brain excitability in people with epilepsy
Mandy Ryan 5 December 2023 ‘Slow’ brain waves could guard against brain excitability in people with epilepsy New research has revealed that slow brain waves, which usually occur during sleep, could also offer protection against increased brain excitability in people with epilepsy. Researchers from University College London (UCL) found that these slow waves can also be present during wakefulness in people with epilepsy.
Put Calm, Cushion, Call on the map in your community
Mandy Ryan 4 December 2023
Going global with epilepsy training
Mandy Ryan 29 November 2023 Going global with epilepsy training We recently took our external training onto the international stage for the first time, delivering an online course for a group of nurses based at a hospital in Hong Kong. Thirteen nurses who specialise in caring for people with learning disabilities tuned in for the training in epilepsy awareness, seizure management and emergency medication on 2 November.
Researchers seek views on postnatal checks for new mothers with epilepsy
A research team based at Oxford University is looking for mothers with epilepsy who have given birth in the last five years to join an advisory group exploring postnatal care and support. The university’s National Perinatal Epidemiology Unit is aiming to carry out a study looking at whether women with epilepsy are more or less likely to receive a six week check after giving birth, and whether this check improves outcomes for those that do.
Autumn Statement - what it means for people with epilepsy
Mandy Ryan 22 November 2023 Autumn Statement – what does it mean for people with epilepsy? Today the Government has set out plans for new welfare reforms, which it says will help more people with disabilities and health conditions such as epilepsy to benefit from flexible working, including working from home.
Putting the patient at the heart of healthcare
Mandy Ryan 22 November 2023 Putting the patient at the heart of healthcare Our Chief Executive Clare Pelham spoke passionately about the need to keep patients front and centre when she appeared on a panel at the New Statesman’s Future of Healthcare conference in London at the end of October. Clare was appearing on a panel that asked the question: “How can the life sciences sector work with the NHS to innovate and improve population health?”.
Lessons to be learned from maternal deaths report
A report released two weeks ago looked at the data behind over 500 women who died during or up to a year following pregnancy in the UK and Ireland in 2019-2021, from causes including epilepsy. Seventeen of the women featured in MBRRACE-UK’s Saving Lives, Improving Mothers’ Care2023 report died from causes related to epilepsy, and 14 of these deaths were due to Sudden Death in Epilepsy (SUDEP).
New training course for universities
Mandy Ryan 12 October 2023 New training course equips universities with the know-how for supporting students with epilepsy We recently ran an epilepsy awareness course for higher education institutions, to help build understanding of how to support students with the condition. Staff representing nine universities across the UK attended the online course at the end of September.
Mid Sussex MP Mims Davies learns life-saving advice at special seizure first aid event in Westminster
The DWP minister and Conservative MP for Mid Sussex joined MPs from across the parties at Epilepsy Society’s event marking World First Aid Day on 13 September. The event showcased Epilepsy Society’s Calm, Cushion, Call message, which has recently been adopted by St John Ambulance as part of their national first aid training. The simple advice for anyone who suspects someone is having a seizure is: stay CALM, CUSHION their head, and CALL for an ambulance.
Exploring doctors’ trade-offs between management, research and clinical training in the medical curriculum: a protocol for a discrete choice experiment in Southern Africa
Methods and analysis Table 1 outlines the attributes and levels for the final DCE that were developed from literature reviews, qualitative research,4 think-aloud interviews with medical doctors and a quantitative pilot DCE (n=41).
We know but we hope: A qualitative study of the opinions and experiences on the inclusion of management, health economics and research in the medical curriculum
Loading metrics Open Access Peer-reviewed Research Article Abstract The achievement of global and national health goals requires a health workforce that is sufficient and trained. Despite considerable steps in medical education, the teaching of management, health economics and research skills for medical doctors are often neglected in medical curricula.
Book Now, Bourbon Later: How to Get into Kentucky’s Best Distilleries
They say that a goal without a plan is just a wish. If your goal is to sip the world’s best Bourbons and explore the iconic distilleries on the Kentucky Bourbon Trail®–you’ve gotta have a plan. And that includes booking tours and experiences well in advance. Why, you ask? Because a lot has changed since the KBT® was born back in 1999. Bourbon is bigger than ever. We’ve gone from six distilleries to 42, and from cult following to global phenomenon.
Using a discrete choice experiment to develop a decision aid tool to inform the management of persistent pain in pharmacy: a protocol for a randomised feasibility study
Data analysis DCE responses will be modelled under the Random Utility Maximisation framework50, using variants of the multinomial logit (MNL) model. This framework assumes respondents make choices described by: (1) where participant (n) at choice task (t) selects the alternative (j) yielding the highest level of utility (Untj).
Bourbon Heritage Month in Northern Kentucky
It’s time for the annual celebration of America’s Native Spirit, Bourbon, the entire month of September. Now before we get into the good stuff, literally, about September in Northern Kentucky, I want to take a minute to explain the history behind the history and how we in NKY own our little slice of Bourbon Heritage Month. So let’s head back to 2007 and spend a little time with an epic Northern Kentuckian, Senator Jim Bunning.
Bourbon Community Joins Forces To Benefit Eastern Kentucky Flood Relief
For Immediate Release – August 4, 2022 FRANKFORT, Ky. – The Kentucky Distillers’ Association, the Bourbon Crusaders charitable organization and Bourbon curator Fred Minnick are joining forces again, this time to support recovery and rebuilding efforts from the catastrophic flooding in Eastern Kentucky.
Public acceptability of non-pharmaceutical interventions to control a pandemic in the UK: a discrete choice experiment
Public acceptability of non-pharmaceutical interventions to control a pandemic in the UK: a discrete choice experiment http://orcid.org/0000-0002-1391-6478Luis Enrique Loría-Rebolledo1, Mandy Ryan1, Verity Watson1, http://orcid.org/0000-0002-1744-4666Mesfin G Genie1, http://orcid.org/0000-0002-6893-9220Ruben Andreas Sakowsky2, http://orcid.org/0000-0003-4995-6057Daniel Powell3, Shantini Paranjothy4 1Health Economics Research Unit, University of Aberdeen, Aberdeen, UK 2Department of Medical...
Bourbon Bottles that Survived Mayfield Tornado Donated to Kentucky Bourbon Benefit
Auction For Western Kentucky Relief Fund At $1.7 Million & Still Going For Immediate Release – December 20, 2021 FRANKFORT, Ky. – The owners of Carr’s Steakhouse that once stood in downtown Mayfield have donated 14 bottles of premium Bourbon they recovered from the rubble of their family business to the Bourbon auction for survivors of the tornadoes that ravaged Western Kentucky.
Wilderness Trail Holiday Release
Dec. 9 For immediate release Danville, KY. – Hot pink is the color of the label for Wilderness Trail Distillery’s six-year-old, four grain, cask-strength Bourbon to be sold during the Dec. 10 and 11 holiday open house. The cost is $250 per bottle with proceeds from the sales going to Wilderness Trail’s charity fund that supports families impacted by cancer. There is a limit of six bottles per person.
Ideas Wanted: Innovators Invited to Pitch Uses for Kentucky Bourbon Industry’s Surplus Stillage
Deadline for submissions is Monday, Aug. 30 OFFICE OF GOVERNOR ANDY BESHEAR COMMONWEALTH OF KENTUCKY FOR IMMEDIATE RELEASE FRANKFORT, Ky. (July 19, 2021) – With the number of Kentucky distillers increasing 250% the past decade, the need to address the industry’s spent-grain byproduct known as stillage has grown as well. Now, innovators and entrepreneurs can submit creative ideas, technologies and solutions for expanded uses of distilling byproduct.
7 Things To Know Before Planning Your Trip To Kentucky
The sun is shining, the Bourbon is calling, and we get it – you want to go out and explore our distilleries. Due to continued COVID restrictions, here’s what you should know before making your way to Kentucky. 1. Book Tours In Advance Since group capacities are still smaller than normal, tours fill up quickly. Booking your tours in advance is an absolute must. Walk-ins most likely will NOT find space on a tour, so be sure to check online or reach out directly to the distillery you want to visit.
Weighting or aggregating? Investigating information processing in multi‐attribute choices
Abstract Multi‐attribute choices are commonly analyzed in economics to value goods and services. Analysis assumes individuals consider all attributes, making trade‐offs between them. Such decision‐making is cognitively demanding, often triggering alternative decision rules. We develop a new model where individuals aggregate multi‐attribute information into meta‐attributes. Applying our model to a choice experiment (CE) dataset, accounting for attribute aggregation (AA) improves model fit.
Kentucky Distillers’ Association Welcomes Sara Barnes as Director of Industry Responsibility & Sustainability
For Immediate Release – January 12, 2021 FRANKFORT, Ky. – The Kentucky Distillers’ Association today announced that industry veteran Sara Barnes has joined the non-profit trade group as Director of Industry Responsibility and Sustainability. Barnes comes to the KDA from the Bourbon Women Association where she spent two years as Managing Director.
Bourbon Women Association Celebrates 10th Anniversary, Welcomes New President Maggie Kimberl
Renowned spirits expert will lead growing organization FOR IMMEDIATE RELEASE LOUISVILLE, Ky. (Jan. 12, 2021) – – – The Bourbon Women Association is ushering in its second decade with the announcement of new leadership — spirits expert, speaker and journalist Maggie Kimberl is the organization’s new president. For more information, visit www.bourbonwomen.org.
The Kitchen & Bar at Bardstown Bourbon Company kicks off 2021 with second Distilled Dinner Series
Private monthly event featuring culinary and bourbon collaborations returns Jan. 21 FOR IMMEDIATE RELEASE BARDSTOWN, Ky. (Jan. 7, 2021) – – –The Kitchen and Bar at Bardstown Bourbon Company, 1500 Parkway Drive, welcomes the return of its successful Distilled Dinner Series Thursday, Jan. 21 from 7 to 9 p.m. The monthly supper series will feature a culinary, cocktail and bourbon experience catered by executive chef Stu Plush, as well as the distillery’s top spirit specialists.
Kentucky Bourbon Festival Announces 2021 Event Dates
All-new festival format offers unique opportunities to celebrate the spirit, its history and the people who love it and make it FOR IMMEDIATE RELEASE Bardstown, Ky. (Dec. 3, 2020) – – – With unique and updated offerings, the Kentucky Bourbon Festival announced the 30th annual festival will take place Sept. 16-19, 2021.
Heaven Hill Distillery Fills Nine Millionth Barrel of Kentucky Straight Bourbon Whiskey
FOR IMMEDIATE RELEASE: December 30, 2020 BARDSTOWN, Ky. – Heaven Hill Distillery, the world’s second-largest holder of aging Kentucky Straight Bourbon Whiskey, today filled its nine millionth Bourbon barrel. Heaven Hill is the only local, independent, family-owned and operated company to reach this historic benchmark. “In a year defined by teamwork and perseverance, today we celebrate another historic Heaven Hill milestone as we fill the nine millionth barrel of Bourbon,” said Max L.
Through a $25,000 Donation from Angel’s Envy, Tales of the Cocktail Foundation Awards Grant to Farm Distilled
FARM DISTILLED is a project building a diverse, workforce legacy that reflects the representation and inclusion of women and people of color in the food and beverage industry NEW ORLEANS, LA (December 21, 2020) – Tales of the Cocktail Foundation (TOTCF) is thrilled to award a $25,000 grant within The Foundation’s Grants Program to Andrea Meriweather for her initiative “FARM DISTILLED” through a donation from Angel’s Envy.
Koenig places historic first order under new direct-to-consumer alcoholic beverage shipping law
KENTUCKY HOUSE REPUBLICAN CAUCUS FOR IMMEDIATE RELEASE MEDIA RELEASE Frankfort, Kentucky (December 14, 2020) – Representative Adam Koenig, Interim Co-Chair of the Licensing and Occupations Committee, broke the bourbon barrier and made history today when he placed the first online order under the provisions of Kentucky’s new direct-to-consumer (DTC) alcoholic beverage shipping law. Koenig sponsored legislation making this consumer-driven change possible during the 2020 Regular Session.
Survey modes comparison in contingent valuation: Internet panels and mail surveys
HEALTH ECONOMICS LETTER Mandy Ryan Corresponding Author E-mail address: m.ryan@abdn.ac.uk https://orcid.org/0000-0001-6643-9129 Health Economics Research Unit, University of Aberdeen, Aberdeen, UK Correspondence Mandy Ryan, Health Economics Research Unit, University of Aberdeen, Foresterhill, Aberdeen AB25 2QN, UK. Email:m.ryan@abdn.ac.uk Search for more papers by this author PDF PDF Share Abstract Stated preferences methods are extensively applied in health economics to elicit preferences.
Health Economics
PDF PDF Share Krucien, N., Sicsic, J., & Ryan, M. ( 2019). For better or worse? Investigating the validity of best–worst discrete choice experiments in health. Health Economics, 28( 4), 572– 586. https://doi.org/10.1002/hec.3869 In the article detailed above, several references which correspond to the studies listed in Table 1 on pages 13–15 were missing. The list of missing references are as follow: Brown, T. M., Pashos, C. L., Joshi, A. V., & Lee, W. C. ( 2011).
For more than money: willingness of health professionals to stay in remote Senegal
Human Resources for Health201917:28 https://doi.org/10.1186/s12960-019-0363-7 © The Author(s). 2019 Received: 29 April 2017 Accepted: 22 March 2019 Published: 25 April 2019 Abstract Background Poor distribution of already inadequate numbers of health professionals seriously constrains equitable access to health services in low- and middle-income countries. The Senegalese Government is currently developing policy to encourage health professionals to remain in areas defined as ‘difficult’.
For better or worse? Investigating the validity of best-worst discrete choice experiments in health
The full text of this article hosted at iucr.org is unavailable due to technical difficulties. RESEARCH ARTICLE For better or worse?
The eyes have it: Using eye tracking to inform information processing strategies in multi‐attributes choices
Although choice experiments (CEs) are widely applied in economics to study choice behaviour, understanding of how individuals process attribute information remains limited. We show how eye‐tracking methods can provide insight into how decisions are made. Participants completed a CE, while their eye movements were recorded. Results show that although the information presented guided participants' decisions, there were also several processing biases at work.
How to Align Your Citizenship Strategy With the UN Sustainable Development Goals
By Mandy Ryan, Managing Director at Changing Our World Have you been tasked with addressing how your company supports the United Nations Sustainable Development Goals (SDGs)? Are you hoping to connect and align your corporate citizenship efforts to a shared global strategy to put your activities in context and amplify your impact?
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