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Mariette H. Driessens on Muck Rack

Mariette H. Driessens

As seen in: Wiley Online Library
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Articles

People With Haemophilia as Data Coordinators: An Analysis of the Ethics and Feasibility of Self‐Management With Personal Health Records

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By Martijn Brands, Lieke Baas, Mariette H. Driessens, Samantha Gouw
| Wiley Online Library Verified
1 Introduction People with chronic and/or complex health conditions, such as haemophilia, often perform various self-management tasks. People who are severely affected by haemophilia are at risk of experiencing spontaneous joint or muscle bleeding that may result in joint damage, for which lifelong monitoring and treatment are required. To prevent bleeds, regular self-administered prophylactic infusions are necessary.
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People With Haemophilia as Data Coordinators: An Analysis of the Ethics and Feasibility of Self‐Management With Personal Health Records

|
By Martijn Brands, Samantha Gouw, Lieke Baas, Mariette H. Driessens
| Wiley Online Library Verified
1 Introduction People with chronic and/or complex health conditions, such as haemophilia, often perform various self-management tasks. People who are severely affected by haemophilia are at risk of experiencing spontaneous joint or muscle bleeding that may result in joint damage, for which lifelong monitoring and treatment are required. To prevent bleeds, regular self-administered prophylactic infusions are necessary.
Open in Who Shared Issue with article?
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