1. O’Brien, M, Clabburn, O. Motor neurone disease/amyotrophic lateral sclerosis: what’s in a name? BJNN 2016; 12(2): 82–84. Google Scholar 2. The International Alliance of ALS/MND Associations . ‘United in the Worldwide Fight Against ALS/MND’, https://www.alsmndalliance.org (2018, accessed August 2018) Google Scholar 3. Motor Neurone Disease Association . ‘What Is MND? ’ https://www.mndassociation.org/about-mnd/where-do-i-start/what-is-mnd/ (2018, accessed August 2018) Google Scholar 4. Oh, J, Kim, J.