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Articles

Common Elements in Rare Kidney Diseases: Conclusions from a Kidney Disease: Improving Global Outcomes (KDIGO) Controversies Conference

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By Segolene Ayme, Detlef Bockenhauer, Simon Day Verified, Olivier Devuyst
| hal.science
Common Elements in Rare Kidney Diseases: Conclusions from a Kidney Disease: Improving Global Outcomes (KDIGO) Controversies Conference Fichier principal PIIS0085253817304787.pdf (553.93 Ko) Télécharger le fichier Origine : Publication financée par une institution
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Recommendations from the European Working Group for Value Assessment and Funding Processes in Rare Diseases (ORPH-VAL)

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By Lieven Annemans, Segolene Ayme, Yann Le Cam, Karen Facey
| Biomed Central (BMC)
To ensure consistency and alignment between Member States, avoid duplication of evaluations, and improve resource utilisation, P&R agencies should build on the official decisions and recommendations made for OMPs at a European level, tailoring and adapting these assessments to their local environment. Currently, the duplication of regulatory and HTA activities at a national level contributes to the lengthy and often variable access to OMPs across Member States [64].
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With research, possibilities are limitless- Rare Disease Day, 2017 - On Medicine

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By Segolene Ayme
| Biomed Central (BMC)
The tenth annual Rare Disease Day is celebrated on the last day of this month, Tuesday, 28th February. The theme of each year’s edition reflects a focal point of activities at the political level, to highlight the expectations of the community and the action items that need to be implemented to improve the quality of life of patients.
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