Thomas Bartlett
London
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Goal for this gMG patient advocate is expanded access to new treatments
In recognition of Myasthenia Gravis Awareness Month in June, the MG Awareness Month campaign features a series of stories highlighting the real-life experiences of people affected by MG, written in their own words. Follow us on Facebook, Instagram, or X for more stories like this, using the hashtag #MGAwarenessMonth, or read the full series. I’m a rare patient living with generalized myasthenia gravis (gMG).
With MG, even getting a pedicure requires careful consideration
During a recent weekend, I did something special: I took my son’s girlfriend out for her very first pedicure as a birthday present. It was a treat for her — and for me. It was my first pedicure since my myasthenia gravis (MG) diagnosis in 2018. With MG, trying something new always comes with a bit of uncertainty. For many of us with the condition, certain products or experiences can trigger symptoms.
My twin explains myasthenia gravis and heat intolerance
When I was a toddler, I tripped and fell into a wall. The impact caused a small wound on my forehead, and I cried out in pain. My twin brother, Aaron, who was napping at the time, woke up wailing, as if he were also in pain. My family told us this story when we were kids. Obviously, I was there, but I don’t remember the context since I was so young. Still, the incident illustrates the connection Aaron and I have as twin brothers.
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