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Tishi Shah

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Articles

Patient and Caregiver Perspectives on Clinical Care, Comprehensive Support, and Communication in Langerhans Cell Histiocytosis Management

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By Jeffrey Edwards, Michael Jeng, Tishi Shah
| Wiley Online Library Verified
Background Patient and caregiver perspectives are becoming more commonly represented in medical literature, though they are not always present for rare conditions, such as Langerhans cell histiocytosis (LCH). This study was performed to explore patient and parental perspectives regarding treatment, psychosocial support, and unaddressed healthcare needs in children diagnosed with LCH. Methods Four focus group discussions (FGDs) were held with six adolescents with LCH, as well as eight caregivers.
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