Yaowaree Leavell

1 Introduction While multidisciplinary ALS clinics are the evidence-based standard of care, given the number of profound needs of people living with ALS (pALS) even robust multidisciplinary ALS teams can struggle to meet all of the needs of pALS and their care partners through primary palliative care (PC) [1-3].

1 Introduction People living with ALS (pALS) experience physical symptoms such as progressive weakness, functional decline, sialorrhea, shortness of breath, and pain; psychological distress including depression, anxiety, and existential concerns; and challenging decisions about their care [1-4]. Additionally, family members and other care partners of pALS frequently struggle with caregiving burden, stress, and grief [3-9].