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Patients' research priorities and participation in primary ciliary dyskinesia research
M. Goutaki reports grants for PCD research from the Swiss National Science Foundation (PZ00P3_185923 and 10001934), the Johanna Duermueller-Bol Foundation (Proj.Nr. 565), and the Swiss Lung Association (2024-01_Goutaki). M. Goutaki is co-chair of the BEAT-PCD European Respiratory Society clinical research collaboration. Y.T. Lam is work package lead in BEAT-PCD. K. Dexter is chair of PCD Support UK and participates in LifeArc Rare Respiratory Diseases Centre.
Definition of sinonasal and otologic exacerbation in patients with primary ciliary dyskinesia - an expert consensus
No potential conflict of interest relevant to this article was reported. JF Papon reports personal fees from Sanofi, GSK, Medtronic and ALK outside the submitted work. AL Poirrier received speaker honorarium from GSK outside the submitted work. The study was supported by a Swiss National Science Foundation Ambizione fellowship (PZ00P3_185923) granted to M Goutaki.
Characteristics of Otologic Disease Among Patients With Primary Ciliary Dyskinesia
Characteristics of Otologic Disease Among Patients With Primary Ciliary Dyskinesia Key Points Question What are the characteristics of otologic disease among patients with primary ciliary dyskinesia (PCD)? Findings In this cross-sectional study of 397 adult and pediatric participants, baseline data from a large multicenter cohort of patients with PCD showed frequent reports of ear pain and reduced hearing, with age as the main factor associated with hearing impairment.
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