Barry Hunt
Ware
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Comparison of specialist ataxia centres with non-specialist services in terms of care access and organisation, health services resource utilisation and costs in Germany using patient-reported data
Keywords Ataxia Specialist centre Care pathway Health service use Costs 1 Introduction The ataxias are a group of complex rare neurological disorders affecting motor functions. Patients with ataxia experience lack of balance and coordination, as well as slurred speech and impaired eye movements among other symptoms [1]. Patients often become wheelchair-bound, and the level of disability can progress leading to dependency [2]. Communication becomes impaired due to speech disturbances.
Comparison of specialist ataxia centres with non-specialist services in terms of treatment, care, health services resource utilisation and costs in the UK using patient-reported data
Discussion In our previous publications17 18 describing the results of the survey in the three countries, we reported a significantly higher level of patient satisfaction regarding the management of the conditions and their individual needs at the SACs in the UK (77% positive feedback in SAC vs 55% positive feedback in non-SAC group (p<0.001) compared with 94% vs 88% in Germany, and 74% vs 62.5% in Italy).
Diagnosis and management of progressive ataxia in adults
Introduction Ataxia, or lack of coordination, is a common manifestation of various neurological conditions, including stroke, brain tumour, multiple sclerosis, traumatic brain injury, toxicity, infection (including following varicella) and congenital cerebellar defects. Its evolution can be acute, subacute, episodic or chronic. Progressive ataxias frequently cause diagnostic uncertainty in general neurological practice, and many cases remain undiagnosed (or ‘idiopathic’).
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