I will always remember October 13, 2016, the day my chronic illness was mentioned on “Grey’s Anatomy.” Sure, my Ehlers-Danlos syndrome has been on shows such as “House M.D.” or “Bones” in the past, but they always got so much wrong. “House” linked it simply to obsessive compulsive disorder (there is no known correlation), and “Bones” skimmed right over it, leaving those of us with the condition feeling as if there was a missed opportunity.
I have Type III Ehlers-Danlos Syndrome (EDS), a condition that's led to everything from breakups to dance championships. You've probably never heard of EDS. It's so rare that I've never talked with another patient or had access to a specialist. Nobody knows what it looks like, so nobody recognizes it when it's right in front of their face.