Deepa Fernandes on Muck Rack

Deepa Fernandes

  • Fellow, Center for Advanced Studies in the Behavioral Sciences
  • Early Childhood Development Correspondent., The World from PRX
  • Early Childhood Development Correspondent., The World from PRX
California
As seen in: The World from PRX, USA Today, Here & Now Anytime, NPR, Pittsburgh Post-Gazette, San Francisco Chronicle, WNYC (New York, NY), KCRW-FM (Santa Monica, CA), Marketplace, The Week Magazine (US), KRCC-FM (Colorado Springs, CO) and
Now: cohost @NPR’s @hereandnow. Past: radio/print journo. Always: Mama. Yogi. 2x immigrant - India-born, Aussie-raised, U.S-settled, on Ohlone land.
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Articles

Families organize amid government funding cuts into rare disease research

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By Deepa Fernandes
| The World from PRX Verified
Dr. Paola Nicolaides visiting the home in Palaichori, Cyrpus, where her family fled in 1974 to escape the Turkish invasion of their city of Nicosia. Some 25 million Americans live with rare genetic diseases — that’s nearly 1 in 13. More than half are children. The path to discovering what the condition is and finding treatments can take years. But for children who are medical mysteries, getting a diagnosis can be life-changing.
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Families organize amid government funding cuts into rare disease research

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By Deepa Fernandes
| The World from PRX Verified
The WorldMay 12, 2026 There have been dramatic cuts to science research grants within the past year. Particularly hard hit: rare disease research, which has always been difficult to fund. But global research collaborations are forging ahead, led by some of the most impacted people. Reporter Deepa Fernandes, whose own daughter has a rare genetic disorder, takes us into the world of Nicolaides-Baraitser syndrome.
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Doctor who discovered rare genetic disease balks at it being named after her

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By Deepa Fernandes
| The World from PRX Verified
The WorldMay 11, 2026 Some 25 million Americans live with rare genetic diseases — that’s nearly 1 in 13. More than half are children. The path to discovering what the condition is, and finding treatments, can take years. But for children who are medical mysteries, getting a diagnosis can be life changing. Today, we meet a Cypriot pediatric neurologist behind the discovery of an ultra-rare genetic syndrome. Dr. Paola Nicolaides was early in her career when she encountered a very unusual patient.
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