Emilie Johnson

Medical terminology requires periodic updates based on the input of affected communities and/or to reflect advances in scientific understanding. An update to terminology to replace the terms ‘ambiguous’ and ‘atypical’ as descriptors of external genital anatomy in the intersex, variations of sex characteristics and differences of sex development (i/VSC/DSD) field could be an important step forwards in the field.

Introduction Adolescents and young adults (AYA) with differences of sex development (DSD) face many challenging healthcare decisions. Fertility preservation is an emerging but experimental option for AYA with DSD. Optimal counseling regarding future fertility options has not yet been defined for this population. Objective To examine the fertility-related attitudes and experiences of AYA with DSD to inform future care needs.

Briony K. Varda, MD, MPH Emilie K. Johnson, MD, MPH, FACS Emilie K. Johnson Correspondence Corresponding author: Affiliations Division of Urology, Ann & Robert H.