Jorunn Drageset

This paper describes the existing scientific literature on children's and parents’ experiences of hospital-based home care. This paper identifies future research areas that need to be explored within the field of children's and parents’ experiences of hospital-based home care. 1 INTRODUCTION Preterm birth and acute or chronic illness in children of any age can require hospitalisation for the child and parents, and a long and demanding care pathway may be necessary.

BPD bronchopulmonary dysplasia BW birth weight CHQ-CF87 Child Health Questionnaire Child Form-87 CI confidence intervals CP cerebral palsy EP extremely preterm GA gestational age HRQoL Health-related quality of life SF-36 Short Form Health Survey VP very preterm VLBW very low birth weight Transformative changes occurred in perinatal medicine during the 1980s and 1990s; however, the implications for the later health-related quality of life (HRQoL) in adults born extremely preterm (EP) remain...

What does this research add to existing knowledge in gerontology? This article provides detailed descriptions and sheds light on understanding the lived experiences of family caregivers caring for frail older relatives. It highlights the intertwined nature of caregiving responsibilities and interpersonal relationships. What are the implications of this new knowledge for nursing care with older people?