Lauren Robarts

Summary The way we “talk” about genetics plays a vital role in whether public audiences feel at ease in having conversations about it. Our research explored whether there was any difference between “what we say” and “what people hear” when providing information about genetics to community groups who are known to be missing from genomics datasets.

On Nov 18–25, 2019, a legal case (QB-2013-009529, ABC vs St George's Healthcare NHS Trust) was heard in the Royal Courts of Justice in London, UK. The case concerns a man who killed his wife in 2007. He was convicted of manslaughter and while in a forensic psychiatric unit, in 2009, was diagnosed with Huntington's disease, a progressive neurological condition that confers a 50/50 inherited risk to first-degree relatives.