Serena Barello
Milan
Associate Professor, behavioural health scientist at University of Pavia (Italy)
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From Participation to Evidence: Listening-Informed Policies and the Epistemic Role of Lived Experience in Population Health
1 Why Conventional Evidence Is Insufficient for Population Health Decision-Making Across health systems, population health policies are predominantly informed by epidemiological indicators, clinical outcomes and economic modelling. These forms of evidence are indispensable for surveillance, planning and accountability.
Supporting Patient‐Centred Decisions on Gene Therapy for Haemophilia A: A Conceptual Model
To the Editor, The emergence of gene therapy for Haemophilia A (HA) represents a significant therapeutic milestone. By offering a potential one-time treatment that restores endogenous factor VIII production, gene therapy introduces new hope—yet also new complexities—for people with haemophilia (PWH) and their care teams. This is not a decision to be taken lightly.
Patient-Centered Innovation Must Include People With Disabilities
To the Editor We commend Christakis and colleagues1 for their timely and visionary Viewpoint on how artificial intelligence (AI) can be leveraged to promote inclusive health for people with intellectual and developmental disabilities (PWIDD). Their call to move beyond concerns about algorithmic bias toward proactive, equity-focused innovation is not only welcome but urgently needed.
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