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WHYpsy Lab

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Articles

From Participation to Evidence: Listening-Informed Policies and the Epistemic Role of Lived Experience in Population Health

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By Serena Barello, WHYpsy Lab, Michela Monaci
| Wiley Online Library Verified
1 Why Conventional Evidence Is Insufficient for Population Health Decision-Making Across health systems, population health policies are predominantly informed by epidemiological indicators, clinical outcomes and economic modelling. These forms of evidence are indispensable for surveillance, planning and accountability.
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Supporting Patient‐Centred Decisions on Gene Therapy for Haemophilia A: A Conceptual Model

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By Sarah Bigi, Serena Barello, Giovanni Di Minno, WHYpsy Lab
| Wiley Online Library Verified
To the Editor, The emergence of gene therapy for Haemophilia A (HA) represents a significant therapeutic milestone. By offering a potential one-time treatment that restores endogenous factor VIII production, gene therapy introduces new hope—yet also new complexities—for people with haemophilia (PWH) and their care teams. This is not a decision to be taken lightly.
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