Skip to main content
Hillary Savoie on Muck Rack

Hillary Savoie

  • Board Chair, The Cute Syndrome Founcation
New York
As seen in: The New York Times, HuffPost, Rolling Stone, Romper, BUST Magazine, Seizure - European Journal of Epilepsy
#specialneeds Mother, writer, #disabilityrights advocate, Founder of @thecutesyndrome, mixer of #cocktails.
Is this you? As a journalist, you can create a free Muck Rack account to customize your profile, list your contact preferences, and upload a portfolio of your best work. Claim your profile

Get in touch with Hillary

Contact Hillary, search articles and posts on X, monitor coverage, and track replies from one place.

Learn more about Muck Rack

Actions

Share this page

Is this you?

As a journalist, you can create a free Muck Rack account to customize your profile, list your contact preferences, and upload a portfolio of your best work.
Claim your profile

Articles

Clinical Characteristics and Treatment Experience of Individuals with SCN8A Developmental and Epileptic Encephalopathy (SCN8A-DEE): Findings from an Online Caregiver Survey

|
By Hillary Savoie, Michael F. Hammer, John Schreiber, Alison Cutts
| Seizure - European Journal of Epilepsy Verified
Highlights • This is the first survey-based study of caregiver experiences in SCN8A-DEE • Caregivers report a broad range of seizure types and genetic variants in patients • Patients generally suffer from high seizure burden and multiple comorbidities • Results suggest new treatments and standardized treatment protocols are needed • Patient-centered research may improve awareness of SCN8A-DEE and patient outcomes Abstract Purpose SCN8A developmental epileptic encephalopathy (SCN8A-DEE) is a...
Open in Who Shared Issue with article?

Amid Covid-19, Parents of Special-Needs Kids Face a Dilemma

|
By Hillary Savoie, EJ Dickson Verified
| Rolling Stone Verified
Bella, 11, sits in her chair, her left hand tapping a yellow joystick switch. She is animated, her blue eyes sparkling, her wavy hair bouncing as she moves her head. Yesterday, she went back to school for the first time, after five months of lockdown. She has a lot to say — talking about music, her brother’s baseball practice, her red chair at school.
Open in Who Shared Issue with article?

When Your Kid’s Heart Stops, There’s No Before

|
By Hillary Savoie
| The New York Times Verified
One mother knows what it’s like to live in fear of the world’s germs. She’s been doing it for nine years. May 14, 2020, 5:00 a.m. ET When Esmé’s body finally relaxes into mine, the clothing between us is damp. Heat always builds where we press against each other, but today it is exacerbated by her rising temperature and the rattle in her chest, courtesy of an adenovirus.
Open in Who Shared Issue with article?
See all 37 licensed articles (41 Total)