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Kayte Spector-Bagdady

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Articles

"A Double-Edged Sword": A Brief History of Genomic Data Governance and Genetic Researcher Perspectives on Data Sharing

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By Kayte Spector-Bagdady
| Texas Medical Center
Journal of Law, Medicine & Ethics Author MSS yes Humans, Information Dissemination, United States, Genetic Research, Genomics, Research Personnel, Genetics, Data Sharing, Genetic Testing, National Institutes Of Health Spector-Bagdady, Kayte; Ryan, Kerry A; McGuire, Amy L; et al., ""A Double-Edged Sword": A Brief History of Genomic Data Governance and Genetic Researcher Perspectives on Data Sharing" (2024). Center for Medical Ethics and Health Policy Staff Publications. 276.
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The precarious future of consumer genetic privacy

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By Natalie Ram, Jessica Roberts, Dov Fox, Kayte Spector-Bagdady
| Science Magazine Verified
After declaring bankruptcy in March 2025, direct-to-consumer (DTC) genetic testing company 23andMe sold the data of more than 15 million people around the world to TTAM Research Institute, a nonprofit organization created by 23andMe’s founder and long-time CEO. 23andMe’s customers might breathe a sigh of relief that their data didn’t end up in the hands of different leadership.
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23andMe Is Potentially Selling More Than Just Genetic Data - The Personal Survey Info It Collected Is Just As Much A Privacy Problem

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By Kayte Spector-Bagdady
| Omaha Daily Record Verified
As soon as the genetic testing company 23andMe filed for bankruptcy on March 23, 2025, concerns about what would happen to the personal information contained in its massive genetic and health information database were swift and widespread. A few days after, a U.S. judge ruled that the company could sell its consumer data as part of the bankruptcy. The attorneys general of several states warned their citizens to delete their genetic data.
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