Tom Shakespeare
Newcastle upon Tyne
Disability, bioethics, culture, cheese, crumpets, general pondering. Chair of Light for the World. Author ofThe Ha-ha: farragobooks.com/book/the-ha-ha/
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Articles by Tom Shakespeare
Changing the Story on Disability?
We hear from those who are striving to shift narratives around disability through public awareness campaigns globally and will explore whether and how an empirical approach to ‘framing’ could effectively move public perceptions and behaviours. We hear from those who are striving to shift narratives around disability through public awareness campaigns globally and will explore whether and how an empirical approach to ‘framing’ could effectively move public perceptions and behaviours.
Views on the upcoming Lancet Commission on disability and health - Authors' reply
Chairing a Lancet Commission is a daunting challenge.1 Our task is particularly great as we are leading the first Commission focused on disability, and it should encompass the experience of 1·3 billion people with disabilities globally.2 We will need to present the overall health inequalities experienced by people with disabilities, the solutions required to reduce those gaps, the economic case for addressing this inequity, and consider why the topic is not yet a global priority.
Children with disabilities are missing from global efforts to address violence
Get full text access Log in, subscribe or purchase for full access. References 1. WHO, UNICEF Pledge platform. World Health Organization, United Nations Children's Fund 2. UNICEF Seen, counted, included: using data to shed light on the well-being of children with disabilities United Nations Children's Fund, 2021 3. Fang, Z ∙ Cerna-Turoff, I ∙ Zhang, C ∙ et al. Global estimates of violence against children with disabilities: an updated systematic review and meta-analysis Lancet Child Adolesc Health.
Announcing The Lancet Commission on Disability and Health: Creating disability-inclusive health systems that leave no one behind
References 1. WHO Global report on health equity for persons with disabilities World Health Organization, 2022 2. Kuper, H ∙ Rotenberg, S ∙ Azizatunnisa', L ∙ et al. The association between disability and mortality: a mixed-methods study Lancet Public Health. 2024; 9:e306-e315 3. Kuper, H ∙ Azizatunnisa', L ∙ Gatta, DR ∙ et al. Building disability-inclusive health systems Lancet Public Health. 2024; 9:e316-e325 4.
Building leadership in disability inclusion in health
FREE with registration! Log in or register to access the full article. References 1. WHO World Report on Disability World Health Organization, Geneva, 2011 2. WHO Global report on health equity for persons with disabilities World Health Organization, Geneva, 2022 3. Kuper, H ∙ Rotenberg, S ∙ Azizatunnisa', L ∙ et al. The association between disability and mortality: a mixed-methods study Lancet Public Health. 2024; 9:e306-e315 4. Heslop, P ∙ Blair, PS ∙ Fleming, P ∙ et al.
Building leadership in disability inclusion in health
FREE with registration! Log in or register to access the full article. References 1. WHO World Report on Disability World Health Organization, Geneva, 2011 2. WHO Global report on health equity for persons with disabilities World Health Organization, Geneva, 2022 3. Kuper, H ∙ Rotenberg, S ∙ Azizatunnisa', L ∙ et al. The association between disability and mortality: a mixed-methods study Lancet Public Health. 2024; 9:e306-e315 4. Heslop, P ∙ Blair, PS ∙ Fleming, P ∙ et al.
Crip Solidarity : Vulnerability as the Foundation of Political Alliances
1. Introduction How can disability theory and activism help us rethink the meaning of solidarity? Building on insights from critical disability studies and feminist political theory, and engaging with gaps within the theoretical literature on the concept, this article responds by advancing two arguments.
Health-worker education for disability inclusion in health
About 1·3 billion people in the world experience disability.Yet in many settings, the competence and understanding of reasonable adjustments among health workers are inadequate to provide the same quality of care to people with disabilities as to individuals without disabilities.More broadly, disability is not sufficiently prioritised in the global agenda.
Effectiveness of Social Inclusion Interventions for Anxiety and Depression among Adolescents: A Systematic Review
This is an early access version, the complete PDF, HTML, and XML versions will be available soon. Open AccessSystematic Review by Xanthe Hunt 1,*, Tom Shakespeare 2, Gabriele Vilyte 1, G. J.
The many worlds of disability
Jan Grue is a phenomenon in the disability world: a 40-year-old with a congenital muscular atrophy, who is an author of fiction for adults and children and is also Professor of Qualitative Research at the University of Oslo, Norway. In this eagerly awaited book, I Live a Life Like Yours: A Memoir, he tells the story of his life and his daily existence. Grue is expert at capturing sights, sounds, and even smells.
I hurt therefore I am: a new approach to our shared vulnerability
Can the disadvantages that disabled people often experience be attributed to intrinsic vulnerability, or do they result from social arrangements? This is a pressing question, both because of the global disability rights movement, and also because of the current COVID-19 pandemic. It’s also a very personal question for me. I was born with short stature (achondroplasia).
Who said disability wasn’t sexy?
This blog was kindly contributed by Tom Shakespeare, Professor of Disability Research at the London School of Hygiene and Tropical Medicine. Tom is writing on the back of two recent HEPI reports on students’ experiences of sex, sexual health and relationships in higher education. Tom’s Twitter is @TommyShakes. I first started researching disability and sexuality twenty-five years ago, interviewing disabled people with two colleagues, leading to the book The Sexual Politics of Disability.
Sound and silence
Ruben, the drummer in the heaviest of rock bands, loses his hearing out of the blue, while on the road in the van he shares with his girlfriend Lou as they travel to gigs around the USA. Reluctantly, and he thinks temporarily, Ruben, a former drug user, accepts refuge in a safe house that Lou has found for him. On the first day, all of the recovering Deaf participants in the shelter are assigned tasks: Ruben's job, scrawled on the whiteboard, is simply “LEARN TO BE DEAF”.
Low numbers of disabled doctors mean potential loss of insightful care for everyone
Hannah Kuper professor, Tom Shakespeare professor, Carmen Soto paediatrician, Sara Booth associate lecturer Kuper H, Shakespeare T, Soto C, Booth S. Low numbers of disabled doctors mean potential loss of insightful care for everyone BMJ 2021; 373 :n948 doi:10.1136/bmj.n948
Triple jeopardy: disabled people and the COVID-19 pandemic
People with disabilities have been differentially affected by COVID-19 because of three factors: the increased risk of poor outcomes from the disease itself, reduced access to routine health care and rehabilitation, and the adverse social impacts of efforts to mitigate the pandemic. 10 years ago, WHO's World Report on Disability noted that people with disabilities were more likely to be older, poorer, experience comorbidities, and be female. 1 WHO World report on disability.
Re: Disabled doctors are not getting the workplace adjustments they need, research finds
Dear Editor The BMA report “Disability in the medical profession – survey findings 2020” does indeed highlight that disabled doctors are not getting the workplace adjustments that they need. However, it also uncovers broader exclusion and discrimination in the medical professions in the UK.
Disabled People in Britain and the Impact of the COVID-19 Pandemic
Working Paper Article Version 1 This version is not peer-reviewed Tom Shakespeare * , Nicholas Watson , Richard Brunner , Jane Cullingworth , Shaffa Hameed , Nathaniel Scherer , Charlotte Pearson , Veronika Reichenberger Version 1 : Received: 26 January 2021 / Approved: 27 January 2021 / Online: 27 January 2021 (13:44:10 CET) Shakespeare, T.; Watson, N.; Brunner, R.; Cullingworth, J.; Hameed, S.; Scherer, N.; Pearson, C.; Reichenberger, V.
Illuminating the empowerment journey of caregivers of children with disabilities: Understanding lessons learnt from Ghana
Original Research Illuminating the empowerment journey of caregivers of children with disabilities: Understanding lessons learnt from Ghana Maria Zuurmond, Janet Seeley, Tom Shakespeare, Gifty G. Nyante, Sarah Bernays African Journal of Disability | Vol 9 | a705 | DOI: https://doi.org/10.4102/ajod.v9i0.705 | © 2020 Maria Zuurmond, Janet Seeley, Tom Shakespeare, Gifty G.
Covid-19: excess all cause mortality in domiciliary care
Judith R Glynn professor of infectious disease epidemiology, Katherine Fielding professor in medical statistics and epidemiology, Tom Shakespeare professor of disability research, Oona Campbell professor of epidemiology and reproductive health Glynn Judith R, Fielding Katherine, Shakespeare Tom, Campbell Oona. Covid-19: excess all cause mortality in domiciliary care BMJ 2020; 370 :m2751
Disability, Health, Law, and Bioethics
Edited by I. Glenn Cohen, Harvard Law School, Massachusetts , Carmel Shachar, Harvard Law School, Massachusetts , Anita Silvers, San Francisco State University , Michael Ashley Stein, Harvard Law School, Massachusetts Export citation Recommend to librarian Buy the print book Historically and across societies people with disabilities have been stigmatized and excluded from social opportunities on a variety of culturally specific grounds.
Man up
Masculinities: Liberation through Photography explores half a century of photographic representations of men—their bodies, their identities, and their social roles. Contemporary politics is full of powerful men—Donald Trump, Boris Johnson, Vladimir Putin, and Recep Tayyip Erdoğan—behaving in stereotypically dominant ways. You could be forgiven for thinking that the more things change, the more things remain the same.
Participation as human right and health benefit for young people with physical disabilities
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Is a four-limb exoskeleton a step in the wrong direction?
Before the Second World War, life expectancy for people with spinal cord injury was low, with most people dying within 3 years of injury. The arrival of antibiotics, improved bladder care, and the introduction of new treatments meant that life expectancy greatly increased, and with this increase came greater interest in rehabilitation. 1 Lifshutz J Colohan A A brief history of therapy for traumatic spinal cord injury. Neurosurgical Focus.
Enabled: how a new BFI collection reveals the complex history of disability on film
Mat Fraser as Richard III. Photo: NOBBY CLARK/ ARENAPAL My first experience of television was a momentary appearance on the documentary Born to be Small (1973). My father, William Shakespeare, was one of the stars, who all had restricted growth, and the film was made by Lord Snowden—himself a survivor of polio. The aim was to show that people with restricted growth could lead normal lives, and the subjects came out with their dignity intact.
Enabled: how a new BFI collection reveals the complex history of disability on film
Mat Fraser as Richard III. Photo: NOBBY CLARK/ ARENAPAL My first experience of television was a momentary appearance on the documentary Born to be Small (1973). My father, William Shakespeare, was one of the stars, who all had restricted growth, and the film was made by Lord Snowden—himself a survivor of polio. The aim was to show that people with restricted growth could lead normal lives, and the subjects came out with their dignity intact.
Rights in mind: Thinking differently about dementia and disability:
The aim of this paper is to argue for the utility of a relational model of disability, as a way of conceptualizing dementia. We explore whether dementia should be considered as a disability, and whether people with dementia might consider themselves as disabled people. We review examples of, and issues raised by, the political activism of people with dementia. We consider how language constructs dementia negatively. We discuss how the environment influences the experience of dementia.
We need to talk about Charles I's "pet dwarf"
– which got Sir Jeffrey into trouble, because duelling was illegal in France, and because his victim was the brother of Lord Croft, a significant man of the court. Banished from France, he was captured by the Barbary pirates and consequently spent 25 years as a slave in North Africa. On the bright side, during this period he had a growth spurt to more than four foot, which must have been useful even if it made him rather less of a curiosity to the nobility.
"We need to talk about Charles I's pet dwarf"
– which got Sir Jeffrey into trouble, because duelling was illegal in France, and because his victim was the brother of Lord Croft, a significant man of the court. Banished from France, he was captured by the Barbary pirates and consequently spent 25 years as a slave in North Africa. On the bright side, during this period he had a growth spurt to more than four foot, which must have been useful even if it made him rather less of a curiosity to the nobility.
Access to primary care for socio-economically disadvantaged older people in rural areas: A qualitative study
Multiple barriers to accessing primary care exist for this group. As primary care is re-organised to reduce costs, commissioners and practitioners must not lose sight of the perceived social contract and models of care that form the basis of how many older people interact with the service.
Illness as a philosophical tool
To view the full text, please login as a subscribed user or purchase a subscription. Click here to view the full text on ScienceDirect. FiguresWhen once I was bed-bound with back pain, I reached for the words of another invalid, Marcel Proust, and began to make headway with his experience of “lost time”.
Disabled people don't want to be your inspiration, but if they are it's no surprise
Should we be inspired by Paralympian achievement? Commentator Frances Ryan recently counselled Guardian readers to be careful to think through their reactions to disabled “superhuman” athletes and academic poster boys like Professor Stephen Hawking. Treat people with disabilities just like everyone else, is the argument. Don’t see us as special. If we have overcome anything, it’s more relevant to highlight the barriers that a disabling world sets in our way, not our medical problems.
The hidden history of eugenics: is this the 'new eugenics'?
Eugenic practices and policies are a thing of the past—consigned to history’s dustbin as a set of social experiments that went terrifyingly wrong—right? Or are we on the cusp of a new eugenic era—a 'liberal eugenics'—driven by the modern mantra of individual choice and modern genetic research? The science of genetics promises to transform our understanding of human development and disease, with exciting prospects for new treatments and therapies.
Why disabled achievers should be remembered
Academic Tom Shakespeare thinks it's important to celebrate the successes of disabled people, past and present. Here he explains why. A free-thinking poet with visual impairment, a painter with learning difficulties, a sculptor with schizophrenia, a painter with cerebral palsy, that's what I've been talking about on Radio 3's The Essay this week.
Why disabled achievers should be remembered
Academic Tom Shakespeare thinks it's important to celebrate the successes of disabled people, past and present. Here he explains why. A free-thinking poet with visual impairment, a painter with learning difficulties, a sculptor with schizophrenia, a painter with cerebral palsy, that's what I've been talking about on Radio 3's The Essay this week.
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