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Daniel Danis on Muck Rack

Daniel Danis

(He/Him)
Juba
As seen in: BBC News, Nature, U.S. Department of State, Genome Medicine, BioRxiv, Cell Press, The American Journal of Human Genetics, medRxiv, Physiological Research, Save the Children and
Covers:  All topics that drive measurable social impact.
Project, Communication, and Advocacy Strategist

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Daniel Danis’s Biography

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Daniel Danis O. Agot is a seasoned communications and development professional with over 15 years of experience designing and delivering donor-funded programs in fragile and conflict-affected contexts. He brings deep expertise in behavior change interventions, policy advocacy, and strategic communications that drive measurable social impact.

His strategic communications experience includes serving as Communications Specialist for a USAID-funded Youth Empowerment program, where he led high-impac…

Daniel Danis’s Journalist Portfolio

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Community-Led Efforts Keep Youth Learning in Juba - edc.org

Community-Led Efforts Keep Youth Learning in Juba - edc.org

In South Sudan, EDC's partners are proving that community-led efforts can keep youth learning and thriving.

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Youth in Juba Celebrate how to Read, Write, and Do Math - edc.org

Youth in Juba Celebrate how to Read, Write, and Do Math - edc.org

In South Sudan, EDC launched a six-month literacy and numeracy training program for out-of-school youth.

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TLS support education continuity for IDPs, provide protective learning spaces for children in Nim...

TLS support education continuity for IDPs, provide protective learning spaces for children in Nim...

The 3-classrooms block constructed by MYRP partners, Plan International with Oxfam. Backstory: Increasing acc…

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South Sudan: Save the Children suspends work in Agok and relocates staff

South Sudan: Save the Children suspends work in Agok and relocates staff

South Sudan: Save the Children suspends work in Agok and relocates staff JUBA, 16 February - Save the Childre…

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R2G: Enhancing local media capacity to address undernutrition among children

R2G: Enhancing local media capacity to address undernutrition among children

South Sudanese journalists from various media houses, including radio, print, television and blogs are attend…

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Dream to learn reignited: Moses goes to school, one hand-pedal at a time.

Dream to learn reignited: Moses goes to school, one hand-pedal at a time.

“Disability is not inability,” says a 13-year-old Moses who continues his journey to achieving his dream of b…

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Articles

Systematic benchmarking demonstrates large language models have not reached the diagnostic accuracy of traditional rare-disease decision support tools | European Journal of Human Genetics

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By Justin Reese, Leonardo Chimirri, Yasemin Bridges, Daniel Danis, J. Harry Caufield, Michael Gargano, Fengchen Liu, Kyran Wissink, Julie McMurry, Enock Niyonkuru, Daniel Korn, Elena Casiraghi, Giorgio Valentini, Melissa Haendel, Damian Smedley, Christopher Mungall, Peter Robinson Verified, Carlo Kroll, Andrew Schmeder, Adam S. L. Graefe, Julius O. B. Jacobsen
| Nature Verified
Abstract Large language models (LLMs) show promise in supporting differential diagnosis, but their performance is challenging to evaluate due to the unstructured nature of their responses, and their accuracy compared to existing diagnostic tools is not well characterized.
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GA4GH phenopacket-driven characterization of genotype-phenotype correlations in Mendelian disorders

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By Lauren Rekerle, Daniel Danis, Filip Rehburg, Andrés Caballero-Oteyza, Pilar Cacheiro, Leonardo Chimirri, Jessica Chong Verified, Evan Connelly, Alexander J.M. Dingemans, Michael H. Duyzend, Tomas Freiberger, Tudor Groza, Peter Hansen, Julius O.B. Jacobsen, Adam Klocperk, Michael Love, Monica Munoz-Torres, Justin Reese, Catharina Schuetz, Damian Smedley, Timmy Strauss, David Zocche, Sylvia Thun, Christopher Mungall, Melissa Haendel, Peter Robinson Verified, Adam S.L. Graefe, Viktor Bily, Petra Gehle, Markus S. Ladewig, Allison J. Marcello, Alexander Mordhorst, Ondrej Vladyka
| The American Journal of Human Genetics Verified
Keywords genotype-phenotype correlation Global Alliance for Genomics and Health Human Phenotype Ontology Mendelian disease Introduction There are a huge number of clinical manifestations of human disease, and even individuals with the same clinical diagnosis may present with different combinations of phenotypic abnormalities, ages of onset of these abnormalities, and degrees of clinical severity.
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RareLink: scalable REDCap-based framework for rare disease interoperability linking international registries to FHIR and Phenopackets - npj Genomic Medicine

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By Filip Rehburg, Samer Alkarkoukly, Daniel Danis, Ana Grönke, Miriam R. Hübner, Alexander Bartschke, Julia L. Fleck, Mirko Rehberg, Jana Zschüntzsch, Tatiana Kalashnikova, Luis Murguia-Favela, Beata Derfalvi, Shahida Moosa, Soichi Ogishima, Oliver Semler, Susanna Wiegand, Peter Kühnen, Christopher Mungall, Melissa Haendel, Peter Robinson Verified, Sylvia Thun, Thomas Debertshäuser, Julian Saß, Elisabeth F. Nyoungui
| Nature Verified
Abstract While Research Electronic Data Capture (REDCap) is widely adopted in rare disease research, its unconstrained data format often lacks native interoperability with global health standards, limiting secondary use. We developed RareLink, an open-source framework implementing our published ontology-based rare disease common data model.
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Interview

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What was your first job as a journalist?

Radio drama voice actor, junior reporter

Have you ever used a typewriter?

Yes

How is social media changing news?

It dumps everything on everyone