Through her photos, photographer hopes to shed light on lesser known diseases. July 15, 2016, 8:35 PM • 5 min read -- Knowing first-hand the profound effect that death or illness of a child can have on a family, New York photographer Karen Haberberg set out to help. Before she was born, Haberberg’s parents lost a child to Tay-Sachs, a rare disorder that destroys nerve cells and leads to death at a young age.